Uncategorized

Week Six

As a refresher, my weight at the end of Week Five was 138.4 lbs.

 

‘The Scream’ by Edvard Munch, as interpreted by C. Gray

 

 

That about captures what Week Six was like…the throat got a lot more sore, smoothies too tough to swallow, likewise soups.  About the only food I could swallow without too much pain were the eggs, and very small bites of ice cream.

The doctors all encouraged me to use the meds I have to ease the pain.  Through most of Week Five, I relied on various combinations of the med marj from our favorite dispensary.  The 20 to 1 CBD to THC tincture seemed to provide some relief, and the THC honey sticks in tea mellowed me out.  But by the end of the week, it was time to dip into the morphine to really cut the pain.

Pre-esophageal cancer  meds (two supplements and Tamosulin)

 

Esophageal Meds

On the far left (naturally) are the med marj remedies:  the eye-dropper 20 to 1 tincture, the honey sticks, and the CBD/THC-infused coconut oil. Each morning I take the antacid concoction, Nexium, a packet of powder that I add water to for a soft gel to swallow.  Then there are two mouth washes, one that numbs the throat, and the other that coats it.  I have been taking them practically daily.  It makes what little eating I do a bit easier, and it certainly facilitates swallowing any pills that I can’t crush to take through the stomach peg (again, thank goodness for the  stomach peg).

There are three pills I take on the day of  chemo, and two more on the each of the next two days.  Then there is an empty bottle of antibiotics I was taking for the infected ‘button’ for the stomach peg.

And then, two different nausea pills have been provided.  I don’t know how they differ, but the one I’ve been taking has cut down on the nausea feeling, so I haven’t experimented with the other.  I have two bottles of morphine, and by week’s end I started taking the full 5 ml dosage.  Now the tricky part is balancing the constipation of the morphine with the stool-softening effect of the Colace medication.

So I have my meds, and the rest of my daily diet is shown below.  That is, eight cans of Osmolite and two eggs.

 

Yummers daily diet

 

We saw the radiation oncologist on Monday, and told her of the increased swallowing difficulty.  She was not surprised, and told me that I should  expect it to get even worse during the week after the last radiation.  “Oh, swell,” I said.  But the good news is that it starts to get better after that.  Hurray.  She also said that the last three days of radiation will be a smaller, more concentrated ‘boost’ that targets the tumor with just a small margin beyond it.

I asked her what happens to the cancer cells when they are killed by the radiation.  She said there are ‘garbage collectors’ in our body that scurry around out of the blood system and gobble up/reconstitute the dead cells into a useful inventory of parts to be used by the body for good things.  Isn’t that amazing?!?!

We will follow up with her in two weeks, and will have a scan in probably three or four weeks.  We meet with the thoracic surgeon on August 8th, presumably for a planning session.

Last Day of Chemo…bye bye.

We had a very nice send off at the Chemo infusion center on Wednesday.  When they unplugged me from my LAST chemo drip bag, all the staff gathered around us and presented me with a ‘Certificate of Completion’ signed by everyone, and presented Carol with a carrot cake (part of which we will freeze, for my later eating enjoyment).

Then, as we left, I got to ring the brass bell to announce the end of my chemo.

Ring the Bell!

We also saw the chemo doctor that day, and even though I was complaining about the pain, she said I was doing remarkably well.  She said some folks are in the hospital on a morphine drip at this stage.  So all that encouragement pumped me up.  And she will be the primary doctor that  I’ll be following up with after surgery.  I’m thankful for that, as she is a very ‘positive’ doctor.

 

On Thursday night I had the best sleep I’ve had  in many moons.  Our massage therapist brought her massage table to the house about 5 pm and proceeded to give me a super-relaxing massage.  Went to bed right after, and slept like a rock….only woke up once to tend to the cats about 2 am.

 

Then Friday was the last radiation treatment.  Yahoo.  All done now except for the recovery and surgery down the road, presumably in a few weeks.  Took a couple pictures of the nice folks at the Sacto radiation center.

Monica checks me in every day.

 

Susan and Alyssa run the radiation machine.

 

I must say, my care has been very, very good.  The doctors at Woodland and Sacramento Dignity Health are excellent, as are the staff at the chemo infusion center in Woodland and the radiation center in Sacramento.  We’ve had home health nurses come by also, as well as visits to the wound nurse and the ER.  Everyone has been friendly, professional, positive, and skilled.

Celebration Time Treatment done!

 

ON ANOTHER NOTE:  We got the spectacular news at the beginning of Week Six that we are going to be grandparents (for the first time)!!!

YES! Scott and Heidi called on Monday to say that Heidi is expecting in early April.  Yahoo.  Very exciting news.  And I should be pretty chipper by then, by golly.

Folks go goofy at Scott and Heidi’s wedding.

 

So, that’s about it for Week Six.  The next blog will be in a week and I’ll let you know how ‘recovery’ is proceeding.

My weight on Friday of Week Six was 139.7 lbs.

 

 

 

 

 

 

8 thoughts on “Week Six

  1. Mr G’s – At the risk of redundancy we will say once again how great your blog is. Thanks again for keeping us updated with such detail, style, grace, and humor! Glad to hear all the very positive news and to know that the chemo and radiation treatments are behind you, although it sounds like you will be dealing with severe throat pain for another week before it gets better. May all those meds, from the far left to the right, do their very best work for you in a completely bipartisan manner!

    And, of course, big congratulations to you and Carol (and Scott and Heidi!) on the anticipated arrival of your first grandchild. We’re sure that news gave you a big boost! Hang in there, dear Friends. We expect to be in touch with you soon.

  2. Congratulations on your perseverance with good humor! All y’all have been amazing so far. I look forward to your next post when you may be feeling a bit better and on the road to the next stops on this journey (including eating again). In the mean time you have some meds to help you coast along (thanks for the pictures and details).

  3. Hi Chris,,
    Although your comments about pain & discomfort are heart wrenching, my feeling today is warm and beautiful, based on how good you look in the photos. You just look so alive and healthy. It’s no surprise to me your doctors say you are doing well.
    Kenny & Gudo send their love and good wishes. We are with them at Trinity Lake for a few days.
    I’m also relieved you are near the bottom of the bell curve, and will soon start feeling better. Keep doing what you are doing! You look. Great!
    Your friend,
    Don

  4. Dear Chris and Carol, We are here on the house boat with Romeri’s and Don just read THE SCREAM .( very clever and clear ) By the way in case you ever lose track of your treatment Donnie has it down to a “gnats ass” ! You both look so good and I’m sure getting closer & closer. And that is the 2nd best looking hat of the SPRING RITUAL I so much want to visit Woodland from a motel when the time is right Love Kenny

    1. Kenny, Dominicus, Ken, and HA,

      thank you for your thoughts, glad you liked ‘the scream’….and the hat (there’s more where that came from). This stuff will be over sooon. I am so ready for a cheesy piece of pizza, a salad, some shishito peppers, gimme some fooooood!!
      Love to all, Chris

  5. Congratulations on both the end of treatments and on being a Grandpa — you’ll both be amazing grandparents! Lucky baby.
    Your blog has been so inspirational. You are one strong guy. Hoping things start to be easier for you soon — you deserve some relief and a good rest.
    Love and hugs,
    Terri

  6. Hey wonder boy..my new name for you. We are so glad you are done with treatment and on the recovery road. Will see you on the course and at my dinner table soon. God love ya grampa. Love to you both. Kiss wonder woman for us. Mark and Dedi

  7. Too many meds to imagine, Chris; but seems to be working for you, so good. Meanwhile, congrats on your new grand.You are going to love that.
    Keep up the good fight, son. You have all of my best wishes.

Comments are closed.